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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- RMJ replied to Baba Fats's topic in Gluten-Free Foods, Products, Shopping & Medications1
Wheat Germ oil in skin balms
It may depend on how refined the wheat germ oil is, and how much is in the product. It is great that you’re being so careful for your girl! -
- Scott Adams replied to David G's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
help in interperating test results as ref has changed
It looks like the first tTg-IgA test was 2x the cutoff for celiac disease, and the second test was 3x the cutoff, so one might conclude that gluten is getting into his diet somehow, as this level normally goes down over time when someone with celiac disease is 100% gluten-free. In teenagers cheating on the diet can be common, as I found out with my daughter... -
- trents replied to David G's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
help in interperating test results as ref has changed
Welcome to the forum community, @David G! I don't know that you can draw any conclusions one way or the other from this data. In either case, the numbers do not indicate a high degree of inflammation IMO. It does appear your son may still be getting some gluten contamination. When he was originally diagnosed, was there an endoscopy/biopsy done? If so... -
- David G posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
help in interperating test results as ref has changed
The lab (ARUP Laboratories)that my Dr. is using has changed the tests reference's and I'm confused, I'm trying to compare the results of my 15yr child to the results of a year ago I wonder if anyone can help me thanks. in 2023 the results were as follows TISSUE TRANSGLUTAMINASE AB, IGA Normal range: 0 - 3 U/mL 6 GLIADIN PEPTIDE ANTIBODY... -
- Flosdiner replied to jadhikary's topic in Traveling with Celiac Disease8
Gluten-Free House Swaps
I am not sure if I ever replied! I am not in a ski area but in NY. My home is gluten-free. 1 hour from the Hamptons, 1 hour from NYC. Pool, 5 min to the beach. 4 BR, 2 offices, etc.... Perhaps one day I will start an allergy friendly home swap site! Thanks for the reply.
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